Tuesday, May 19, 2015
I'm Healthy and 14 weeks pregnant!
So its taken this long to clear the top left area of my scalp from fibers and debris but the hair is growing back now correctly. The relief I have felt since removing the fibers from that area is amazing. Did I just pull an implant out piece by piece? WTH is really going on? Even those weird hard white things don't make much of an appearance anymore. Feeling back to normal :) So far so good with the baby too. I thought for sure Morg was going to prevent me from ever having kids. So glad I beat it, for now anyway. Hope anyone who has followed my journey these past 5 years feels some relief too. And Thank you.
Thursday, October 9, 2014
Removing fuzzballs and other fibers stuck under my skin (scalp)
so I have been complaining for years now about this really active spot on the top left side of my head. WELL I have once again been removing hair follicles from the root and have finally come to a better understanding of what may have been going on up there. I removed my hair in this was a few years ago but I didn't do it right so the problem although got better still remained.
I have taken some notes to remind me of my findings..the first 1 is ingrown hairs..that seemed to be a big part of the problem and not just ingrown hairs but pretty long ones..felt like I was ripping open a bag of johnny cat litter when I would remove these "fibers". They look kinda like my hair but much darker and often thicker..and straighter..my hair is kinky. I also discovered foreign straigt hairs growning in with my hair follicles or with these new or changed dark black 'hairs" making it very uncomfortable (not enough room for all the crap goin on) I found 2 little bugs which looked like little parasites and flushed them..also discovered that there were bumps under my skin which were trapped fiber balls and that's why I was pullin so much stuff "fibers" out of that spot. I also saw twig like hairs..really straight and almost swollen Infected) looking. Small things that looked like they could be dead bugs (if I had a microscope) or they were just bits of trapped broken ingrown hairs idk but I do know I have not felt so much RELIEF in a very long time. Neosporin really helps with plucking and preventing infection. Everytime I pulled a hair from a soar spot the soar spot went away like last time but I left the bump..eventhough it still bothered me I didn't finish cleaning out my scalp. Its weird often I had to pluck a hair from an area close to but not really right next to the soar area inorder to get the soarness to go away.. yeah the johnny cat thing..the perforated seal on the bag..when it rips..same felling..then a little swelling but then smoothness..no more raised area..then when a fiber ball comes out that's when the bumps go away..i also found something that looked like a broken piece of my nail stuck in the soarest spot (lots of stuff in the spot but with every removal of a foreign item..more and more relief until finally...gone) oh yeah I finally had to take a sharp knife and gently scrape the bump open btw. I think those two bugs were up to know good in there for sure twisting my hairs and fibers around causing confusion along with causing itching and scabbing and ingrown situations.
I took antibiotics for 7 days last month..once again needed it..helped my energy level and probably helped with antagonistic soar spots as well..happy to say its been two years since last I needed antibiotics and this time it was only for a week as opposed to almost one year :). (Had a gastro/ulcer issue) I am hoping this time I finally got THE SPOT! and hopefully it wont return..FOR THE MOST PART i swear that damn spot and a few others are the only things reminding me of this horrible affliction these days. I really have come a long way fighting this illness. thus far...
WILL KEEP YOU POSTED.. LOVE AND BLESSINGS!
OH I THOUGHT ABOUT SHOWING A PIC OF MY SAD BIG BALD SPOT..BUT IM JUST NOT INTO IT..sorry ;)
oh also been inhaling kids gummy vitamins with iodine (potassium iodide)..lots lately.. oh and been having some cramping issues..think its barium poisoning. Potassium (ie.. Greek yogart, pickle juice and bananas) helps cramping.
And NO I have not been back to a doc since 2011 or so lol too traumatic.. im traumatized enough..hee hee. SERIOUSLY!
I have taken some notes to remind me of my findings..the first 1 is ingrown hairs..that seemed to be a big part of the problem and not just ingrown hairs but pretty long ones..felt like I was ripping open a bag of johnny cat litter when I would remove these "fibers". They look kinda like my hair but much darker and often thicker..and straighter..my hair is kinky. I also discovered foreign straigt hairs growning in with my hair follicles or with these new or changed dark black 'hairs" making it very uncomfortable (not enough room for all the crap goin on) I found 2 little bugs which looked like little parasites and flushed them..also discovered that there were bumps under my skin which were trapped fiber balls and that's why I was pullin so much stuff "fibers" out of that spot. I also saw twig like hairs..really straight and almost swollen Infected) looking. Small things that looked like they could be dead bugs (if I had a microscope) or they were just bits of trapped broken ingrown hairs idk but I do know I have not felt so much RELIEF in a very long time. Neosporin really helps with plucking and preventing infection. Everytime I pulled a hair from a soar spot the soar spot went away like last time but I left the bump..eventhough it still bothered me I didn't finish cleaning out my scalp. Its weird often I had to pluck a hair from an area close to but not really right next to the soar area inorder to get the soarness to go away.. yeah the johnny cat thing..the perforated seal on the bag..when it rips..same felling..then a little swelling but then smoothness..no more raised area..then when a fiber ball comes out that's when the bumps go away..i also found something that looked like a broken piece of my nail stuck in the soarest spot (lots of stuff in the spot but with every removal of a foreign item..more and more relief until finally...gone) oh yeah I finally had to take a sharp knife and gently scrape the bump open btw. I think those two bugs were up to know good in there for sure twisting my hairs and fibers around causing confusion along with causing itching and scabbing and ingrown situations.
I took antibiotics for 7 days last month..once again needed it..helped my energy level and probably helped with antagonistic soar spots as well..happy to say its been two years since last I needed antibiotics and this time it was only for a week as opposed to almost one year :). (Had a gastro/ulcer issue) I am hoping this time I finally got THE SPOT! and hopefully it wont return..FOR THE MOST PART i swear that damn spot and a few others are the only things reminding me of this horrible affliction these days. I really have come a long way fighting this illness. thus far...
WILL KEEP YOU POSTED.. LOVE AND BLESSINGS!
OH I THOUGHT ABOUT SHOWING A PIC OF MY SAD BIG BALD SPOT..BUT IM JUST NOT INTO IT..sorry ;)
oh also been inhaling kids gummy vitamins with iodine (potassium iodide)..lots lately.. oh and been having some cramping issues..think its barium poisoning. Potassium (ie.. Greek yogart, pickle juice and bananas) helps cramping.
And NO I have not been back to a doc since 2011 or so lol too traumatic.. im traumatized enough..hee hee. SERIOUSLY!
Wednesday, July 23, 2014
What I have learned (updated 8/2/2014)
Vermox antiparasitic
Ampicillin antibiotics
Tetracycline antibiotics
Antifungal
Bay Leaves
Probiotics
Noni
Neosporin
Vitamins, Minerals, H20, Oxygen (healthy eating, healthy mind)
Exercise
Laughter
OH & MARIJUANNA REALLY HELPS AS WELL.. did I leave that important fact out of all my many post? I do apologize ;)
my scalp symptoms are definitely parasitic..
took vermox last year and most muscle spasms stopped
scalp suddenly began being really active last few weeks after a long break so I took two Rx Vermox pills (got last ones on Ebay), one Friday, the other Saturday and will take another in 2wks (actually has been almost two weeks now). They are one dose pills.. I took 2 for good measure. Right away I felt the die off. That damn active spot started up first. 2nd pill there was much less reaction but really did need 2nd pill. Crazy how many dancing fibers came out yesterday. Freaky that they were still dancing. Urgh!
from scalp (fuzz ball and fishing line like fiber) and fishing line like fiber also came out of belly button
(a few weeks later now and my scalp feels lots of relief..i really needed to take the vermox..I flaked last year and only took 1 pill but did realize my bad muscle spasms pretty much stopped after that 1 pill)the Neosporin with pain relief is awesome on soar spots and may kill or evict some bacteria/parasites, or so it seems anyway. Currently I feel almost 100% with a constant yet slightly annoying scalp problem. Been feelin this well for some time now :) yes that's progress. 4 years later!
https://www.facebook.com/MorgellonsIsReal
Ampicillin antibiotics
Tetracycline antibiotics
Antifungal
Bay Leaves
Probiotics
Noni
Neosporin
Vitamins, Minerals, H20, Oxygen (healthy eating, healthy mind)
Exercise
Laughter
OH & MARIJUANNA REALLY HELPS AS WELL.. did I leave that important fact out of all my many post? I do apologize ;)
my scalp symptoms are definitely parasitic..
took vermox last year and most muscle spasms stopped
scalp suddenly began being really active last few weeks after a long break so I took two Rx Vermox pills (got last ones on Ebay), one Friday, the other Saturday and will take another in 2wks (actually has been almost two weeks now). They are one dose pills.. I took 2 for good measure. Right away I felt the die off. That damn active spot started up first. 2nd pill there was much less reaction but really did need 2nd pill. Crazy how many dancing fibers came out yesterday. Freaky that they were still dancing. Urgh!
from scalp (fuzz ball and fishing line like fiber) and fishing line like fiber also came out of belly button
(a few weeks later now and my scalp feels lots of relief..i really needed to take the vermox..I flaked last year and only took 1 pill but did realize my bad muscle spasms pretty much stopped after that 1 pill)the Neosporin with pain relief is awesome on soar spots and may kill or evict some bacteria/parasites, or so it seems anyway. Currently I feel almost 100% with a constant yet slightly annoying scalp problem. Been feelin this well for some time now :) yes that's progress. 4 years later!
https://www.facebook.com/MorgellonsIsReal
Friday, January 31, 2014
2014 update
Happy New Year All! Sorry its been awhile. Googles new all in one bull makes it difficult for me to sign in to this blog.
So anyway Im doing GREAT! No symptoms most of the time however last week I did have a strange thing happen. Felt like my symptoms were going off in a pattern for a couple days and there were bugs crawling on my scalp. I know for sure the latter because I felt something moving in that spot on top of my head that i always complain about. Hadnt felt much for a good while so i put rubbing alcohol, bleach and peroxide on my scalp..then i heard/felt a pop..there was also a bump and then for two days i felt crawling like a spider.. took a bit to get rid of it. Ok then I found SULFUR8 at Sallys Beauty supply and online..its a scalp/hair conditioner and its awesome!! Anyway..that was last week..this week im back to no symptoms really and only taking, noni Garcinia and b17 sometimes.
So anyway Im doing GREAT! No symptoms most of the time however last week I did have a strange thing happen. Felt like my symptoms were going off in a pattern for a couple days and there were bugs crawling on my scalp. I know for sure the latter because I felt something moving in that spot on top of my head that i always complain about. Hadnt felt much for a good while so i put rubbing alcohol, bleach and peroxide on my scalp..then i heard/felt a pop..there was also a bump and then for two days i felt crawling like a spider.. took a bit to get rid of it. Ok then I found SULFUR8 at Sallys Beauty supply and online..its a scalp/hair conditioner and its awesome!! Anyway..that was last week..this week im back to no symptoms really and only taking, noni Garcinia and b17 sometimes.
Tuesday, September 10, 2013
an update and a Morgellons study
so I have not been taking Noni much the last few weeks and finally after months of relief, this week I have been feeling activity under my scalp once again. Not only have I found a few white fibers but I have also been finding a few green, yellow and violet colored fibers here and there. Not many white worm like parasites have been appearing until very recently. Ive also felt the little stings or bites last week or so. Im back on the Noni now and we shall see what happens. I also have not taken any shark cartilidge so maybe I will do that as well. But for the most part I feel Ive been living 98% symptom free. I have been taking Laetrile and Garcinia Cambogia and sometimes Reishi for a couple months with the Noni. Ive only not been taking Noni for a few weeks. It makes my palms flaky which concerns me regarding my liver/kidneys.
*side note.. all summer I've had low grade anemia.. been taking Iron pills last couple of months but was wonderin why I would get so damn tired all of a sudden sometimes. Not like when MD first hit me..that was a different feeling of constant fatigue. Anemia feels different because I feel healthy and energetic most of the time but will have flashes of extreme fatigue. Our iron levels are constantly fluctuating depending upon what we eat. The initial MD fatigue I felt was more like death creeping up on me. I wonder if the iron pills are having a bad effect on this disease..hmmmm.. Its gotta be between that and the noni, the return of symptoms I mean. {I also had about four white bugs come out of my scalp (the notoriously active areas) within a two week period several months ago..think just after taking the Vermox I believe. After that I experienced much relief and non activity.}
Interesting report I just read points to more evidence that our cells are creating these fillaments/fibers via Keratin. Now I feel we are getting closer to real treatment ;)
http://www.omicsonline.org/2155-9554/2155-9554-3-140.php
oh and I changed brands on the DLPA and it gave my dog hives..so I stopped giving it to her last week and she seems to be fine without it so far. Still giving her Laetrile.. I was not giving her laetrile when her skin rash showed up..only dlpa and glucosamine/chondroitin..so it could have been either which gave her the rash. Now im waiting to see if it goes away. But she did roll around on her back in the grass the other day..something I never thought Id see her do again. :)
*side note.. all summer I've had low grade anemia.. been taking Iron pills last couple of months but was wonderin why I would get so damn tired all of a sudden sometimes. Not like when MD first hit me..that was a different feeling of constant fatigue. Anemia feels different because I feel healthy and energetic most of the time but will have flashes of extreme fatigue. Our iron levels are constantly fluctuating depending upon what we eat. The initial MD fatigue I felt was more like death creeping up on me. I wonder if the iron pills are having a bad effect on this disease..hmmmm.. Its gotta be between that and the noni, the return of symptoms I mean. {I also had about four white bugs come out of my scalp (the notoriously active areas) within a two week period several months ago..think just after taking the Vermox I believe. After that I experienced much relief and non activity.}
Interesting report I just read points to more evidence that our cells are creating these fillaments/fibers via Keratin. Now I feel we are getting closer to real treatment ;)
http://www.omicsonline.org/2155-9554/2155-9554-3-140.php
oh and I changed brands on the DLPA and it gave my dog hives..so I stopped giving it to her last week and she seems to be fine without it so far. Still giving her Laetrile.. I was not giving her laetrile when her skin rash showed up..only dlpa and glucosamine/chondroitin..so it could have been either which gave her the rash. Now im waiting to see if it goes away. But she did roll around on her back in the grass the other day..something I never thought Id see her do again. :)
Morgellons news 2013
http://www.omicsonline.org/2155-9554/2155-9554-3-140.php
http://www.youtube.com/watch?v=8HLlnpzB5v8&feature=share&list=UUvsye7V9psc-APX6wV1twLg
http://www.prweb.com/releases/2013/2/prweb10402216.htm
http://rarediseases.info.nih.gov/gard/browse-by-first-letter/M
http://www.youtube.com/watch?v=8HLlnpzB5v8&feature=share&list=UUvsye7V9psc-APX6wV1twLg
http://www.prweb.com/releases/2013/2/prweb10402216.htm
http://rarediseases.info.nih.gov/gard/browse-by-first-letter/M
Thursday, June 20, 2013
update
doin great..feelin like most stuff is gone out of me.. I noticed that the combination of garcinia cambogia and noni seem to have a positive pushing out affect as well as a good herx but I get that from the noni alone. There are days where I take no medication and have no activity. Still slight spasms in my legs and arms every so often but nothing like what it was. So now i'm taking noni mostly(sometimes with garcinia c) and some days shark cartilage which also seems to help. only time will tell but so far it just seems like a really slow process. I have had a good # of those fuzz balls come out in the last several weeks and then no more activity in those areas.
gave my dog some antibiotics, and apricot seeds and DLPA daily for pain and she is feelin better and in a better mood and panting much less but still walking slow because whateva is wrong is still at issue however. hopin to get her an x-ray very soon.
gave my dog some antibiotics, and apricot seeds and DLPA daily for pain and she is feelin better and in a better mood and panting much less but still walking slow because whateva is wrong is still at issue however. hopin to get her an x-ray very soon.
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